Looking back over the years
And whatever else that appears,
I remember I cried when my mother died
Never wishing to hide the tears.
And at fifty-nine years old,
My father, God rest his soul,
Couldnât understand why the only lass
He had ever loved had been taken,
Leaving him to start
With a heart so badly broken
Despite encouragement from me,
No words were ever spoken.
And when he passed away,
I cried and cried all day.
Alone again, naturally.
Considering Gilbert OâSullivan was 21 when he wrote âAlone Againâ, itâs a remarkably mature lyric, particularly as he didnât know his father well, and his mother was alive when the song was penned.
But it is my current earworm and with a slight change in the words, it reflects my mood.
Of course Iâm not âaloneâ: I have a partner and a network of friends, but there is an element of loneliness as part of the immigrant experience that hardly anyone talks about.
When you emigrate to parts unknown with your parents, and you donât have a say in it, you arguably have a different perspective on your new home country than someone who perhaps chose to go there, and you certainly have a different perspective to someone born and bred there.
Iâve never blogged the full story though most of my friends know it.
There is a photo somewhere of my family as I knew it at age two or so: my parents, my maternal grandmother, and me. At that age, I knew there were other family membersâpaternal grandparents, aunts, uncles, cousinsâbut this was my immediate definition of family, and I held on to that for a long time. Certainly it was my definition during my formative years.
I came with my parents and not my grandmother, landing here three days shy of my fourth birthday.
When my grandmother arrived in March 1978 under the family reunion policy, my mother and I being her only living descendants, I felt âthe familyâ was complete again.
Immigrants will probably tell you, more so if they are not of the majority race, that they have a sense that they need to face life in this new country together. That most of the people around you wonât be able to share the experience youâre having, because youâre making sense of it through a different lens. We spoke Cantonese at home, and we will have talked about the odd customs of the people here, from the stupidity of the colloquialism bring a plate to my parents needing to fight for the Wellington Hospital Board to give my mother her correct pay (something which ultimately required the intervention of former mayor Frank Kitts). Most of your peers wouldnât know what it was like for a white person to tell your Mum and yourself to go back to where you came from. Or to be denied service at what is now Countdown on account of your race.
Repeated experiences like that give you a sense of âthe family versus the worldâ. Happy ones naturally outnumber negative onesâby and large, New Zealanders are a tolerant, embracing peopleâbut itâs probably natural for humans to build up some sort of defence, a thicker skin to cope with a few of the added complications that the majority donât have to think twice about. Itâs why some of us will jump to âracismâ as an explanation for an injustice even when the motives may not be that at all. Itâs only come from experience and reinforcement, certainly at a time when overt racism was more commonplace in Aotearoa, and more subtle forms were at play (as they still are with decreasing frequency; hello, Dominion Post).
As the familyâs numbers dwindled, it impacts you. It certainly impacted my father in 1994, in the way OâSullivanâs song says, and as âthe last man standingâ there is a sense of being alone. Never mind that my father had aphasia in his last years and couldnât respond intelligibly when I spoke to him: the fact he could hear me and acknowledge me was of great comfort. He understood the context. And frankly, precious few others do.
Other than aunts, uncles and cousins, the only time I really get to use Cantonese now is at shops where Cantonese speakers serve me. The notion of an âAsianâ invasion where youâre walking the streets not knowing whatâs being spoken (Iâm looking at you, Winston) is rot. You feel the loss of identity as well as your family because identity is relative: while you have a soul, a deeper purpose, that is arguably more absolute, you answer who you are in relation to those around you. I am proud of my heritage, my culture, my whakapapa. They identify me to the rest of you. Each of you holds a different impression, part of the full picture, just as in branding. The last person who understood part of my identity, the one relative to my immediate family who came with me to this new land, is now gone, and that cannot be reclaimed.
Therefore, this isnât solely about the passing of an elderly man and the natural cycle of life. This is about how a little bit of you goes as well. Wisdom tells you that you form another part of your identityâsay how I relate to my partner, for instanceâand in time you rebuild who you are and how you face the world. However, that takes time, and OâSullivan might be an earworm for a little while longer.
When Twitter is awesome. Thank you, everyone, tÄnÄ rawa atu koutou.
Wellington Twitter. Our friend @jackyan's Dad is extremely unwell in hospital so please can you send him good wishes and strength. Jack, we are all with you through this trying time, but still hoping for a miracle. Arohanui to you and Amanda ❤
Ah Jack, sending aroha to you and your family. Glad it was a peaceful passing. 💞He knew how much you cared, loved and supported him. The end of a rich journey, and now peaceful slumber.
Jack, you will be in my prayers. 🙏❤ It is hard to lose someone, especially at this time of year. Having experienced it personally, I wish for you that the memories of your father will help sustain you through this time. Lots of love!
@jackyan Iâm terribly sorry to hear your dad has left us. I know you cared for him as well as loved him. My sincerest condolences and hugs go out to you.
When Douglas Bader recorded in his log book on the aeroplane accident that cost him his legs, he wrote, âBad show’.
It was men like Bader, Audie Murphy, Claire Lee Chennault and Douglas MacArthur that my father spoke of as heroes from his childhood.
There were plenty more from our own culture but Iâm using these ones given my largely occidental audience, and Dad really did cite them as well.
None of these men, by the accounts Iâve read, were braggarts. Most were indeed very humble about their contributions to their countries.
But even my late pacifist veteran grandfather (he served, but desperately hated war) would consider these men heroes, as my father did.
I may have blogged at other times about my first years in New Zealand, but I wonât go into depth about it as it would be too much of a digression from the point I want to make.
Perhaps itâs growing up in an immigrant household that what your father tells you a real man should be trumps what you witness at school from your classmates about what they think masculinity is.
And you see your own father display the qualities of what he considered to be gentlemanly. Children are good mimics.
A gentleman, he would say, has the ability to refrain. A lesser man might act out, or strike someone, but that is not a civilized man. Society runs best when people are civilized.
Those ideas of what we call toxic masculinity today were never displayed in my household and are utterly foreign to meâand as an immigrant, âforeignâ has two meanings in that sentence. I may be the âforeignerâ as far as others (such as certain Australian-owned newspapers) are concerned, even after living here for 43 years, but from your own perspective, you can more easily distance yourself from any undesirable behaviour, saying, âThatâs not who I am.â
In the early years at my first high school, I may have had some cause to doubt the fatherly advice because what I witnessed was an extreme and intellectually stunted form of hero worship that might was right. That the brute force of the rugby player was true masculinity and if you didnât have it, then you were a âpoofterâ or a âfaggotâ. Brag, brag, brag, be it about sports or sexual encounters.
This, as any real rugby player knows, and I have met men who have represented our national side, is a wholly inaccurate perception of who they are.
They will tell you that true men display values of camaraderie, teamwork, quiet achievement, tolerance and decency. No All Black I know talks himself up as anything other than one of the boys who happened to be lucky enough to be chosen.
Indeed, some of the bigger blokes who wound up in the school rugby teams, especially the Polynesian and Māori lads, were generally gentle and protective fellows with strong family values.
Yet that misplaced perception held by immature high school boys, I fear, informs many young men of how they are to conduct themselves in adult life.
They think that being jerks toward women is the norm. ‘Treat ’em mean, keep ’em keen,’ is the familiar refrain.
Iâve had comments over the years of, âWhy didnât you make a move on me?â when I either could not read the signs or felt that forceful âmasculineâ behaviour was not particularly respectful. As a middle-aged man I wonder if the patriarchy, âjust the way things areâ, has warped expectations for heterosexual men and women. (I canât obviously speak for our LGBTQI community.)
However, what I do know is sending intimate pictures of yourself via a dating app or messaging service is disgusting (and, incidentally, has not worked for any man in the history of the planet), and that constant desperation is particularly unappealing.
I remember a female friend showing me the sorts of messages she received from potential suitors on a dating website.
âHoly crap,â I said. âThis is the calibre of men out there?â
And when I talk to my partner today, she tells me that that was par for the course.
But I have a quality relationship because I did listen to my father and behaved in a way that I thought he would approve of. Whatever he taught me wound up being hard-wired in me and I never aped the boys in my first high school. He was right after all, even if it took longer for me to be in a long-term relationship.
No, I donât have a massive list of âconquestsâ because it honestly isnât about quantity and life is too short for empty encounters. And while my behaviour at uni age, and shortly after, wasnât always exemplary, as I tried to figure out the norms, Iâve also come through this knowing that I didnât have to lie to any woman, and not a single woman out there will be able to say I did anything physical without her consent.
While I obviously told my other half of my career when we met (âSo what do you do?â), I never mentioned my mayoral bids till our fourth date, a month in to our courtship (she lived out of the country when I ran), and I admitted I didnât always have an easy time in business during a period of my life, including the recession. I am human, after all. And if one canât accept me for the bad as well as the good, then is the relationship founded on reality? Or simply fantasy?
Weâve recently had a murder trial here in New Zealand with the accused a young man who is described as a serial liar, and accounts from women he had met were tragic: he would lie about his occupation, bigging himself and his family up, or pretend he had terminal cancer. Enough has been written on this creep.
I had the misfortune to meet another young man who has since been exposed by the Fairfax Press as a con man, who also told constant lies about his life, thinking that talk of personal wealth would impress me and a co-director of one business we have.
Mercifully, the latter case didnât wind up with anyone physically hurt, and I know plenty of young people who would never behave like this. But it got me wondering whether the core of these cases tells us something about how certain young men feel inadequate, because of a misplaced hero worship of a warped form of masculinity that leaves them as outsiders.
Iâm by no means excusing the murderer because he frankly committed a heinous crime, in a premeditated fashion. I remain appalled at the victim-shaming that I saw reported as though the deceased, the one person who couldnât answer, were on trial. Iâm also not excusing the failed con-man who any viewer of Hustle would be able to spot a mile away: his actions, too, were his own. But I am pointing at society and how we men have shaped expectations.
For I look at some male behaviour and they are entirely at odds with what a man should be.
While examples like Douglas Bader might not resonate with young men today, because his example is too far back in history for them (the biopic is in black and white), surely we can find ones of humble men who accomplish great deeds and donât have to go on social media to talk themselves up.
Just tonight I was at a dinner for Merrill Fernando, the 89-year-old founder of Dilmah Tea, who was earlier today conferred an honorary doctorate by Massey University.
When I asked if he was now Dr Fernando, he replied that he would still be Merrill Fernando, and that all the honours he had receivedâand they are plentifulâwould never change who he was. His humility and his faith continue to inspire me.
This is the mark of a decent and admirable man.
And surely we can find examples where men arenât being disrespectful to women and show us that that is the norm.
Surely we donât need to berate anyone who doesnât fit the trogoldyte mould and use homophobic slurs against them.
Because, chaps, I donât believe what defines a man, a real man, a fair dinkum bloke, has actually changed, at its core, from what my Dad told me.
There is room for the jocks, the geeks, the musos, the artists, the romantics, the extroverts and introverts, because we all have our strengths.
One female friend of mine tells me that itâs safer for her to presume all men are jerks as her default position till proved otherwise, and I know fully why she would take that position. On social media she points to the âbrosâ, men whoâll gang up on women because they donât like them for calling it as it is, or having a different viewpoint. In real life she has had unwanted attention, even after she tells them sheâs queer.
These men, the bros, the braggarts, the dick-pic senders, the liars, the bullies, the slanderers, are actually trying to change the definition of what a real man isâand that, to me, seems to be non-masculine, insecure and inadequate. We can do betterâand history shows that we had done once.
Forty-three years ago (September 16, 1976), we arrived in this country.
As we flew from Sydney and into Wellington, my Dad pointed out the houses below to me. âSee, those are the sorts of houses New Zealanders live in,â he said. I thought it was odd they lived in two-storey homes and not apartment blocks. I was three at the time, so I had no clue about the population density of Aotearoa.
I frequently point out just how cloudy and grey that day was. I donât remember a summer of â76ââ77, just as no one here remembers a summer of â16ââ17. Only one other car, a Holden station wagon, went along Calabar Road in the opposite direction as we left Wellington Airport.
Before we departed Hong Kong days earlier, my maternal grandmotherâthe person closest to me at that point and whom I would desperately miss for the next 18 monthsâgave me two very special Corgi models at the airport, large 1:36 scale Mercedes-Benz 240Ds. I said goodbye to her expecting to see her in weeks.
As I was put to bed that night by my fatherâit wasnât usually his roleâhe asked if I wanted to see the cars, since I had been so good on the flights. He got them out and showed me, and I was allowed to have a quick look before they were put back into his carry-on bag.
None of us knew this was the trip where weâd wind up in Aotearoa. Mum had appliedâI went with her to the New Zealand High Commission in Connaught Tower in Hong Kong to get the formsâbut we had green cards to head to Tennessee. But, my mother, ever careful, didnât want to put all her eggs into one basket. And like a lot of Hong Kongers at the time, they had no desire to hang around till 1997 and find themselves under communist rule.
It was a decision that would change our lives.
Whilst here, word got back homeâand then out to usâthat New Zealand immigration had approved our application. In the days when air travel cost a fortune, my parents considered our presence here serendipitous and decided to stay. What point was there to fly back if oneâs only task was to pack?
Itâs hard not to reminisce on this anniversary, and consider this family with their lives ahead of them.
Iâve had it good. Mum never wanted me to suffer as she had during the famine behind the Bamboo Curtain, and to many in the mid-1970s, getting to the Anglosphere was a dead cert to having a better life.
I had a great education, built a career and a reputation, and met my partner here, so I canât complain. And I couldnât have asked for more love and support than I had from my immediate family.
My grandmother eventually joined us under the family reunion policy in 1978. My mother and I were her only living descendants.
Despite the happiness, you donât think, on that night in 1976, that in 18 years my mother would die from cancer and that my widowed father, at 80, would develop Alzheimerâs disease, something of which there is no record in the family.
Despite both parents having to make the decision to send a parent to a rest home, when it came time for me to do the same thingâand it was the right decision given the care Dad neededâit was very tough.
A friend asked me how I felt, and I said I felt like âthe meanest c*** on earth,â even though I knew I would have made the same decision regardless of other factors as his disease progressed.
Immigrant families stick together because we often have the sense of âus versus the worldâ. When Racist â80s Man tells you to go back to where you came from, itâs not an experience you can easily share with others who arenât immigrants and people of colour. So as our numbers diminishedâmy grandmother in 1990 and my mother in 1994âit was Dad and me versus the world, and that was how we saw things for the decades that followed.
That first night he went to live in a home was the same night I flashed back to the evening of September 16, 1976âand how impossibly hard it would have been to foresee how things would turn out.
Heâs since changed homes twice and found himself in excellent care at Te Hopai, though he now needs to be fed and doesnât detect as much to his right. The lights are going out.
Itâs a far cry from being the strong one looking after your three-year-old son and making sure he could fall asleep in this new country, where things were in such a state of flux.
For reasons unknown to me, May seems to be a quiet month for my blogging. I looked back to 2010 and usually, this is the month I blog less. Maybe itâs the change in seasons, or I find other things to occupy my time.
This year, itâs been far more eventful, as on the 10th inst., we moved. Thirty-six years at the same address, and Iâm now in the northern suburbs of Wellington. The postal code has changed from a 6 to a 5 at the beginning, which gives you an idea of just how far north we went.
As a middle-aged man I donât need to be that close to town any more, and since Iâve always worked from home, all I really need is a stable and reliable internet connection. We need space for team members who work for me on-site, which we now have far more of. The internet connection is the one thing that really needs work in terms of my daily routine, since we are on multiple levels, and D-Linkâs Powerline âmains modemsâ have not been that good here, while Vodafoneâs Ultrahub also loses too much in terms of bandwidth in different parts of the property.
Above: There’s too great a loss of bandwidth through the D-link Powerline units. The top screen shot is a device plugged into the Vodafone Ultrahub near the Chorus ONT.
Itâs goodbye Evans Bay views (which have never been the same since the Indoor Sport Stadium was erected at great additional unnecessary expense to ratepayers; a clear reminder not to trust certain establishment politicians) and hello to rolling hills and native bush.
It hasnât all sunk in yet, as Iâve been working while the move has taken place, and havenât had the time to enjoy the process. Rationally, I know we made the right decision, otherwise weâd never have done it, but other than the last half-hour at the old place, letting the memories of each room flood in as I walked through for the last time, I havenât been particularly emotional. In fact, when the buyers of my old home signed, I was actually happier for them than I was for myself, since they had been searching for a while, and I felt they got a good deal. Here they were, third time lucky in this street, and getting the largest house on the largest section, and, with the greatest respect to my former neighbours, a more solid one, too. (Yes, Iâve knocked on your timber inside over the years.) They have a view which they never would have had in the other places.
They additionally have a connection to a former resident on the street, which I wonât go into publicly; and one partyâs father actually came from the street we moved into. Also in one of those âvery New Zealandâ coincidences, one dear friend who helped me move headed to Ćtaki that evening, and told a woman there that he had been helping us. It turns out that she was the sister of one half of the couple that previously owned our new home. These seem to be very âharmoniousâ events that appeal to my heritage, the sort of signs that to others might signal that âitâs all meant to beâ if you were seeking something beyond the rational.
In one year, in a street of 14 homes, four properties have changed hands; if you count the place on the corner of the street (which technically isnât part of it), itâs five properties. If anyone were to write its history (not that anyone would), 2018â19 was the period of a sea change in terms of the people there.
Weâre still living among boxes, and there are still two storage unitsâ worth of stuff that we need to empty out, but weâll just have to take things one step at a time. We filled a skip full of old stuff, and probably could have filled a second, once you added the miscellaneous trips our friends and I made to the tip. But on this end there are still a few things that need to go.
For the last two years, the Mary Potter Hospice has been the principal beneficiary of the nicer items, which included new things that my parents and grandmother acquired but never used.
One remarkable thing is how well the old furniture fits with the new place, and, interestingly, how comparatively poorly it fitted with the old. Itâs as though my family bought for this house. When you look back over four decades, you get a sense of how things do intersect and come together, if youâre lucky, and we certainly regard ourselves as very lucky indeed. It makes me happy that things have worked out on many fronts, save for my Dadâs Alzheimerâs disease. Perhaps for him, too, there is a silver lining: we have wound up closer to him, so a drive north only takes 16 minutes (on a good day) rather than close to an hour.
Yesterday, we visited the old street to collect the last bits and pieces out of the garage, and said hi to one of our former neighbours. Weâll visit others we didnât have a chance to farewell, since the move out took longer than planned, and we had to dash off to get to the new place that day. That neighbour had been there for 60 years, and had seen everything from one couple having an argument where the woman chased the man with a shotgun round the grounds of Rongotai College, to the residents that had come and gone over the years. Interestingly, she didnât remember a case of arson (to an old Humber car) in the 1980s, to which the fire brigade was called; but other tales remained as clear as day.
I wonât go into the nitty-gritty as there are many tales to tell, and Kiwi motorway behaviour is pitiful in so many cases as we drive up north. And for privacy reasons, I wonât blog too much just yet about how weâre finding the new place, as weâre still adjusting to it ourselves. I will say the former owners were meticulous, filling up and painting over walls where things were once mounted (unless they used those 3M strips), and we are ever so grateful to them.
On this Pope Gregory Arbitrary Calendar Start Day, I wrote to a contact of mine at Renault New Zealand.
In mid-2018, I joked that, since Renault had no dealers in Wellington (never mind what’s listed on their websiteâthe only people who can see a dealer there are psychic mediums), I could sell them out of my house.
Today, I may well have gone some way toward doing that, as someone I know would like a test drive of a first-gen Captur after I put it into her consideration set. After all, I put my money where my mouth is with Renault, so when I recommend one, I do so with some authority.
In the same note, I detailed some observations about Renault New Zealand’s marketing. I have since forwarded it to their top man in the country.
I concluded all that with, ‘And I reckon Hiroto Saikawa is dodgy and he was trying to cover up his own incompetence by framing his old boss and mentor. But that’s another story.’
Even if I sold one car, I might become the city’s top Renault seller. ‘If you find a better car, buy it.’
Above: Dad and I wait for his psychogeriatric ‘re-evaluation’ on November 30, or, treading a path of bullshit.
Even in the rest home, Dad remained very protective of the other residents, so much so that there was an incident involving a day care resident in late November that saw the home insist that he be re-evaluated.
I said to the head nurse, âI just want him to be given a fair go. What are the chances he will be allowed back there?â
âIt depends on what the psychogeriatrician says.â I sensed the insincerity in her voice.
For when the psychogeriatrician from Wellington Hospital called (actually, he told me he was a âpsychiatristâ and to this day I remain unsure if a psychogeriatrician or psychogeriatric nurse has seen him), he told me that he was told that they didnât want him back.
Lie number one, then.
This is despite a course of medication that has actually helped Dad with his alertness.
Of course, during this whole evaluation, Dad contracted pneumonia, for which he had to be on a course of Augmentin.
The âpsychiatristâ also told me that he would prescribe Risperidone to Dad as the original course of medication that I had discussed with our GP, Donepezil, was, in his opinion, ineffective.
When speaking to the nurses and health care assistants at Ward 6, I was always informed that Dad was taking Augmentin and Risperidone.
He was still having balance issues and a severe cough but deemed âmedically fitâ and had to leave the hospital.
The social worker worked extremely hard to find a dementia care unit for him. I have him on a waiting list at one home, but till that place is free, the closest is Bupa in Whitby.
Iâm now reading his discharge sheet, to discover that he is âBest suited for dementia level care or high dependency care if BPSD cannot be treated successfully.â Note the word if.
Frankly, they havenât had a chance to see if any course of medication has helped his BPSD. I have witnessed it, to my knowledge, they havenât.
Everyone seems dead keen to get Dad into dementia-level care that heâs being pigeonholed.
So he was, in my non-medical opinion, prematurely discharged and shipped off to Bupa.
And the discharge sheet doesnât mention anything about Risperidone other than that it is PRNâprescribed only when needed. It doesnât appear to be a regular medicine.
So, was I lied to at Wellington Hospital or is the discharge sheet bullshit?
Lie number two, then.
Iâm not saying that Dad wonât eventually have to go into dementia-level care but it doesnât seem necessary, and the Bupa staff agree.
Today I discovered him agitated because he was hungry.
The staff said he hadnât been eating.
He was brought his dinner but I noticed that his dentures were missing.
No shit, you took his dentures so he couldnât eat.
But no one put two and two together.
Seeing I was there he made a valiant effort to try to eat some cold meat they had served him and choked horribly on it. I had to stop him and said I would enquire what was going on.
The carers made a good effort looking in his room to no avail.
No one was at reception but fortunately there were some cellphone numbers posted on a notice there. I texted one of the RNs, who, despite not working today, made a massive effort to find out what had happened. God bless this man for digging.
Turns out they took Dadâs dentures for cleaning last night and no one thought to return them. They were in the office, locked away.
All of this has me deeply angry that they think they can treat elderly people like this. And how poor the communications are because they aren’t treating them as human beings.
If I wasnât a daily visitorâand driving from Rongotai to Whitby is no easy taskâthen would Dad have just starved?
He has aphasia so he can only point and show if heâs upset.
One RN told me he was agitated earlier today. Again, no shit.
Iâve texted the social worker my concerns. Discharging a patient prematurely is one thing but taking him to a facility where they have effectively starved him for a day is cruel and negligent.
All this sprung because of the clinical and inhuman way he was marginalized in late November.
It set off a chain of events that give you very little confidence in the treatment of Alzheimerâs and dementia sufferers.
Despite the kindness of the HCAs and the staff at Wellington Hospital, there are clear gaps here which I wonder whether others might question.
I will advise the GP tonight as he and the social worker have batted in our corner consistently.
He needs to be out of the clutches of a clumsy multinational corporation and put somewhere actually consistent with his level of dementia.
And if I donât get some satisfactory answers for once, then things will get ⊠interesting.
Above: Dementia Wellington’s support has been invaluable.
Today my father turned 83.
Itâs a tough life that began during the SinoâJapanese War, with his father being away in the army, and his mother and grandmother were left to raise the family on their land in Taishan, China.
In 1949, the Communists seized the property and the family had to start again, as refugees, in Hong Kong.
Ever the entrepreneur, during the Vietnam War, Dad and his business partner, an US Army doctor by the name of Capt Dr Lawson McClung, set up a mail-order business for deployed troops. As I recall it, Lawson said that he would be able to secure jobs for my parentsâmy late mother was a nurseâat his stepfatherâs hospitals in Tennessee. We either had a US green card, or one was merely procedural.
My mother realized we had family in Aotearoa and I remember going with her to Connaught Tower, to the New Zealand High Commission. I didnât know what it was for, but filling in the gaps it must have been to secure forms for immigration. As Plan Bs go, it was a pretty good one.
In 1976 came another move as we headed to New Zealand, originally on holiday, given that my grandfather had taken ill whilst here. As we flew in to Wellington, Dad pointed at the houses below. âThose are the sorts of houses New Zealanders live in.â I thought it was fascinating, that they didnât live in apartment blocks.
That first night here, on September 16, 1976, it was Dad who tucked me in, which at this point wasnât typical: it was usually my grandmother who did this. He asked if I wanted to see the two Corgi toy cars that my grandmother had bought me prior to the trip, which I could have if I behaved myself on the flights. I did. He took them out of the luggage and I had a brief look at them. This was an unfamiliar place but it was just a holiday and things would be back to normal soon.
It was during this holiday that word came that our immigration application had come through. My parents regarded our presence here as serendipitous. They neglected to tell their four-year-old son that plans had changed.
For the first 18 years of my life, I regarded âthe familyâ as being my parents and my widowed maternal grandmother, who lived with us ever since I could rememberâand I remember an awfully long time. We even had a photo taken around 1975â6 of the four of us, that I just remember represented everyone dearest to me.
As âthe familyâ lost one member to a stroke brought on by Parkinsonâs disease and complications from diabetes, and another to cancer, by 1994 it was just Dad and me.
At the beginning of the 2010s, Dad had a bout of shingles. By 2014 he was forgetting individual words, and I insisted he get checked out for dementia. Around the time of his 80th birthday, in 2015, the diagnosis from the psychogeriatrician was formal, although he could still speak with some stuttering and one or two words unreachable by his brain. The CT scans showed a deterioration of the left side of his brain, his speech centre. Within half a year there would only be one or two words per sentence that were intelligible.
The forms for an enduring power of attorney were drawn up as 2016 commenced. He was still managing, and he had his routines, but in mid-2018 we decided he should get some respite care.
He wasnât happy about this, and it took four hours of persuading, as well as a useful and staunch aunt, who got Dad to put on his shoes and head up with us to Ultimate Care Maupuia.
We had thought the second visit in late July would be easier but it took 19 hours over two days, an experience which we do not want to repeat.
Dad had lost the ability to empathize with us and was anxious and agitiated. While he insisted he could look after himself while home alone, there were signs over the last year that indicated he could not. He fell while having the âflu in mid-2017 and Amanda and I came to a house with all its lights off. We had no idea how long he had been down. By 2018 he would cry if left home alone. Even at his most insistent that he could look after himself, we returned after the first day of trying to coax him to Maupuia to find that he had not eaten.
The second day was when I called everyone I could think of to find a way to get to respite, since we werenât going to be around to look after him.
You name it, I called it, Age Concern aside. Dementia Wellington, the police, the rest home, Wellington Free Ambulance, Driving Miss Daisy, Care Coordination, Te Haika, and so on. I spoke to 11 people that day.
Te Haika said that the issue wasnât mental, but legal, which was about as useful as telling an American Democrat that Donald Trump was the Messiah.
Driving Miss Daisy said that I wasnât in their area but a colleague was, not that I ever heard back from that colleague.
Dementia Wellington, the police, and Free Ambulance were brilliant, as was my lawyer, Richard Brandon of Brandons. Our GPs at Kilbirnie Medical Centre were also excellent.
The up shot was that Free Ambulance could take Dad if the enduring power of attorney was enacted, and that would take a declaration of mental incapacity by the GP, which was duly written. He was also good enough to prescribe some medication to calm Dad down.
However, because it wasnât an emergency situation, there was no telling when Free Ambulance could come by.
It did make me glad that they were one of the charities I gave to this year.
However, you donât ever imagine a situation where you effectively drug your Dad to be able to put his jacket on and take him to a rest home for respite care. I felt like part of the Mission: Impossible team, except the person being drugged wasnât a Ruritanian dictator, but someone on the same side. When I say Mission: Impossible, I donât mean that series of films with Tom Cruise, either.
On September 16, 1976, you didnât think that in 42 yearsâ time your Dad would have dementia and youâd need to break a promise you made years ago that you would never put him in a home.
You also feel that that photo of âthe familyâ has been decimated, that youâre all alone because the last adult in there isnât around any more for you to bounce ideas off and to have a decent conversation with.
I realize I hadnât been able to do any of that with Dad for years but it feels that much more painful knowing he canât live in a place he calls home presently.
And you also realize that as a virtually full-time caregiver who has cooked for him for yearsâand now you know why I didnât reenter politics in 2016âthat his condition really just crept up on you to a point where what you thought was normal was, in fact, not normal at all.
You also realize that the only other time he was compelled to leave his home without his full volition was 1949, by a régime he had very little time for through most of his lifetime. You donât expect to be the next person to have to do that to him, and thereâs a tremendous amount of guilt that comes with that.
Earlier this week, our GP reissued his letter in âForm 5â (prescribed under the Protection of Personal and Property Rights Act 1988), which I drafted, since these procedures arenât altogether clear. It makes you wonder how people without law degrees might cope. Tomorrow I will meet with Care Coordination and see if Dad can be reassessed based on his current condition. He was only very recently assessed as not needing long-term care so it will be interesting to see if they accept that he has deteriorated to this extent. Iâm not a Mystic Meg who can make a prediction on this.
The rapidity of Dadâs changeâone which he himself noticed, as years ago he would complain that his âbrain felt different today compared to yesterdayââhas been a surprise to us, although mostly he is happy at Maupuia and interacts positively with the staff. Itâs not all smooth sailing and there are days he wonders when he can come home.
And I find some solace in that his father, and his mother-in-law, wound up in care for less. My grandfather had PTSD from the war and was unable to cook for himself, though even at the end he was bilingual (being educated in the US) and had successfully quit smoking after 70 years. My grandmother needed care because of her insulin injections but was also mentally fit.
But part of me expected that Iâd see it through with Dad to the end, that these rest homes were some western thing that separated families, and here is part of that immigrant experience.
The reason you didnât see as many Chinese New Zealanders on welfare wasnât down to some massive savingsâ account, but a certain pride and stoïcism in being to keep it to yourself. Youâre in a strange land where thereâs prejudice, and thatâs often enough for families to say, âF*** everyone else, weâre getting on with it and doing it ourselves.â
And thatâs what we did as âthe familyâ. We fought our own battles. Dad was once a helluva correspondent whose letters used words like proffer and the trinity of ult., prox. and inst., and plenty of officials got the sharp end of his writing. When Mum got cancer we brought in our own natural medication because westerners couldnât fathom that the same stuff cleared my grandfatherâs liver cancer in 1976 and healed several other members in the whānau. Dad sacrificed everything to try to save Mum and that was the closest example I had of what youâd do for someone you love.
When youâre deep in the situation, rationality goes out the window and youâre on autopilotâand often it takes serious situations, like two daysâ angst and stress of trying to get someone into respite care, to make you think that staying at home isnât the best for someone who did, even though he wonât admit it, thrive under rest home care.
We know that if we left it even later, it would be even tougher to get Dad into care and he would resist his new surroundings more.
Todayâs lunch at Maupuia was curried beef on rice in recognition of Indian Independence Day, a much nicer meal than what I might have made for Dad.
He has staff to hug and laugh with even if I have no idea where heâs putting his dirty undies.
And while aphasia means he hasnât made any new friends yet, I have faith that heâll do well given the circumstances.
Itâs those circumstances that mean the situation we find ourselves in, with Dad at the home, is one which weâll roll with, because, like 1949 and 1976, forces outside our control are at play.
Iâd love to make his Alzheimerâs go away given that I already lost one parent prematurely.
My mind goes to a close friend who recently lost her mother, and her father was killed in a car crash around the time my Mum died. Basically: not all of us are lucky enough to have both our parents peacefully go in their sleep. Many of us are put through a trial. And thereâs a real reason some of us have been hashtagging #FuckAlzheimers on Twitter, if out of sheer frustration.
For those who have made it this far, here are the points I want you to take away.
âą Immediately upon finding out your parent has dementia, get your enduring power of attorney sorted out, for both property and personal care.
âą Dementia Wellington is an excellent organization so get yourself along to the carer support groups, second Monday of every month. Dementia New Zealand canât help at this level.
âą Care Coordination has been very helpful and their referral to Dementia Wellington proved more effective than phoningâhowever, I should note that the organization changed for the better between Dadâs original diagnosis in 2015 and how they are today.
âą You do need âForm 5â from your GP or someone in a position to assess your parentâs mental capacity to kick off the enduring power of attorney.
âą Itâs OK to cry, feel emotionally drained and ask your friends for support. Itâs your parent. You expected to look after them and sometimes you need to let others do this for everyoneâs good. It doesnât mean you love your parent any less. It also doesnât mean you are placing yourself or your partner above him. It just means you are finding the best solution all round.
Dad is still “there”, and he recognizes us, even if he doesnât really know what day it is, canât really cook for himself, and doesnât fully understand consequences any more. Iâm glad I spend parts of every day with him while Iâm in Wellington. And while this wasnât the 83rd birthday I foresaw at the beginning of the year, he is in a safe, caring environment. I hope the best decision is made for him and for all of us.
My late mother was a nurse. Before she was a midwife at Wellington Women’s Hospital, she was a staff nurse in wards 21 and 26 at Wellington Hospital.
From what I remember, ward 21 was first, which meant she was working there some time between 1976 and 1978. This is a letter that she received from a Sheila Mahony. When I first blogged, I assumed it was from a patient, but a quick search suggests that there was a Sheila Mahony who was a supervisor there. I don’t know the story behind this, but between the lines you can work out that the kindness expressed here is typical of nurses. The letter is dated December 23, so this was likely in response to a gesture Mum made in the spirit of Christmas.
