Above: Dementia Wellington’s support has been invaluable.
Today my father turned 83.
It’s a tough life that began during the Sino–Japanese War, with his father being away in the army, and his mother and grandmother were left to raise the family on their land in Taishan, China.
In 1949, the Communists seized the property and the family had to start again, as refugees, in Hong Kong.
Ever the entrepreneur, during the Vietnam War, Dad and his business partner, an US Army doctor by the name of Capt Dr Lawson McClung, set up a mail-order business for deployed troops. As I recall it, Lawson said that he would be able to secure jobs for my parents—my late mother was a nurse—at his stepfather’s hospitals in Tennessee. We either had a US green card, or one was merely procedural.
My mother realized we had family in Aotearoa and I remember going with her to Connaught Tower, to the New Zealand High Commission. I didn’t know what it was for, but filling in the gaps it must have been to secure forms for immigration. As Plan Bs go, it was a pretty good one.
In 1976 came another move as we headed to New Zealand, originally on holiday, given that my grandfather had taken ill whilst here. As we flew in to Wellington, Dad pointed at the houses below. ‘Those are the sorts of houses New Zealanders live in.’ I thought it was fascinating, that they didn’t live in apartment blocks.
That first night here, on September 16, 1976, it was Dad who tucked me in, which at this point wasn’t typical: it was usually my grandmother who did this. He asked if I wanted to see the two Corgi toy cars that my grandmother had bought me prior to the trip, which I could have if I behaved myself on the flights. I did. He took them out of the luggage and I had a brief look at them. This was an unfamiliar place but it was just a holiday and things would be back to normal soon.
It was during this holiday that word came that our immigration application had come through. My parents regarded our presence here as serendipitous. They neglected to tell their four-year-old son that plans had changed.
For the first 18 years of my life, I regarded ‘the family’ as being my parents and my widowed maternal grandmother, who lived with us ever since I could remember—and I remember an awfully long time. We even had a photo taken around 1975–6 of the four of us, that I just remember represented everyone dearest to me.
As ‘the family’ lost one member to a stroke brought on by Parkinson’s disease and complications from diabetes, and another to cancer, by 1994 it was just Dad and me.
At the beginning of the 2010s, Dad had a bout of shingles. By 2014 he was forgetting individual words, and I insisted he get checked out for dementia. Around the time of his 80th birthday, in 2015, the diagnosis from the psychogeriatrician was formal, although he could still speak with some stuttering and one or two words unreachable by his brain. The CT scans showed a deterioration of the left side of his brain, his speech centre. Within half a year there would only be one or two words per sentence that were intelligible.
The forms for an enduring power of attorney were drawn up as 2016 commenced. He was still managing, and he had his routines, but in mid-2018 we decided he should get some respite care.
He wasn’t happy about this, and it took four hours of persuading, as well as a useful and staunch aunt, who got Dad to put on his shoes and head up with us to Ultimate Care Maupuia.
We had thought the second visit in late July would be easier but it took 19 hours over two days, an experience which we do not want to repeat.
Dad had lost the ability to empathize with us and was anxious and agitiated. While he insisted he could look after himself while home alone, there were signs over the last year that indicated he could not. He fell while having the ’flu in mid-2017 and Amanda and I came to a house with all its lights off. We had no idea how long he had been down. By 2018 he would cry if left home alone. Even at his most insistent that he could look after himself, we returned after the first day of trying to coax him to Maupuia to find that he had not eaten.
The second day was when I called everyone I could think of to find a way to get to respite, since we weren’t going to be around to look after him.
You name it, I called it, Age Concern aside. Dementia Wellington, the police, the rest home, Wellington Free Ambulance, Driving Miss Daisy, Care Coordination, Te Haika, and so on. I spoke to 11 people that day.
Te Haika said that the issue wasn’t mental, but legal, which was about as useful as telling an American Democrat that Donald Trump was the Messiah.
Driving Miss Daisy said that I wasn’t in their area but a colleague was, not that I ever heard back from that colleague.
Dementia Wellington, the police, and Free Ambulance were brilliant, as was my lawyer, Richard Brandon of Brandons. Our GPs at Kilbirnie Medical Centre were also excellent.
The up shot was that Free Ambulance could take Dad if the enduring power of attorney was enacted, and that would take a declaration of mental incapacity by the GP, which was duly written. He was also good enough to prescribe some medication to calm Dad down.
However, because it wasn’t an emergency situation, there was no telling when Free Ambulance could come by.
It did make me glad that they were one of the charities I gave to this year.
However, you don’t ever imagine a situation where you effectively drug your Dad to be able to put his jacket on and take him to a rest home for respite care. I felt like part of the Mission: Impossible team, except the person being drugged wasn’t a Ruritanian dictator, but someone on the same side. When I say Mission: Impossible, I don’t mean that series of films with Tom Cruise, either.
On September 16, 1976, you didn’t think that in 42 years’ time your Dad would have dementia and you’d need to break a promise you made years ago that you would never put him in a home.
You also feel that that photo of ‘the family’ has been decimated, that you’re all alone because the last adult in there isn’t around any more for you to bounce ideas off and to have a decent conversation with.
I realize I hadn’t been able to do any of that with Dad for years but it feels that much more painful knowing he can’t live in a place he calls home presently.
And you also realize that as a virtually full-time caregiver who has cooked for him for years—and now you know why I didn’t reenter politics in 2016—that his condition really just crept up on you to a point where what you thought was normal was, in fact, not normal at all.
You also realize that the only other time he was compelled to leave his home without his full volition was 1949, by a régime he had very little time for through most of his lifetime. You don’t expect to be the next person to have to do that to him, and there’s a tremendous amount of guilt that comes with that.
Earlier this week, our GP reissued his letter in ‘Form 5’ (prescribed under the Protection of Personal and Property Rights Act 1988), which I drafted, since these procedures aren’t altogether clear. It makes you wonder how people without law degrees might cope. Tomorrow I will meet with Care Coordination and see if Dad can be reassessed based on his current condition. He was only very recently assessed as not needing long-term care so it will be interesting to see if they accept that he has deteriorated to this extent. I’m not a Mystic Meg who can make a prediction on this.
The rapidity of Dad’s change—one which he himself noticed, as years ago he would complain that his ‘brain felt different today compared to yesterday’—has been a surprise to us, although mostly he is happy at Maupuia and interacts positively with the staff. It’s not all smooth sailing and there are days he wonders when he can come home.
And I find some solace in that his father, and his mother-in-law, wound up in care for less. My grandfather had PTSD from the war and was unable to cook for himself, though even at the end he was bilingual (being educated in the US) and had successfully quit smoking after 70 years. My grandmother needed care because of her insulin injections but was also mentally fit.
But part of me expected that I’d see it through with Dad to the end, that these rest homes were some western thing that separated families, and here is part of that immigrant experience.
The reason you didn’t see as many Chinese New Zealanders on welfare wasn’t down to some massive savings’ account, but a certain pride and stoïcism in being to keep it to yourself. You’re in a strange land where there’s prejudice, and that’s often enough for families to say, ‘F*** everyone else, we’re getting on with it and doing it ourselves.’
And that’s what we did as ‘the family’. We fought our own battles. Dad was once a helluva correspondent whose letters used words like proffer and the trinity of ult., prox. and inst., and plenty of officials got the sharp end of his writing. When Mum got cancer we brought in our own natural medication because westerners couldn’t fathom that the same stuff cleared my grandfather’s liver cancer in 1976 and healed several other members in the whānau. Dad sacrificed everything to try to save Mum and that was the closest example I had of what you’d do for someone you love.
When you’re deep in the situation, rationality goes out the window and you’re on autopilot—and often it takes serious situations, like two days’ angst and stress of trying to get someone into respite care, to make you think that staying at home isn’t the best for someone who did, even though he won’t admit it, thrive under rest home care.
We know that if we left it even later, it would be even tougher to get Dad into care and he would resist his new surroundings more.
Today’s lunch at Maupuia was curried beef on rice in recognition of Indian Independence Day, a much nicer meal than what I might have made for Dad.
He has staff to hug and laugh with even if I have no idea where he’s putting his dirty undies.
And while aphasia means he hasn’t made any new friends yet, I have faith that he’ll do well given the circumstances.
It’s those circumstances that mean the situation we find ourselves in, with Dad at the home, is one which we’ll roll with, because, like 1949 and 1976, forces outside our control are at play.
I’d love to make his Alzheimer’s go away given that I already lost one parent prematurely.
My mind goes to a close friend who recently lost her mother, and her father was killed in a car crash around the time my Mum died. Basically: not all of us are lucky enough to have both our parents peacefully go in their sleep. Many of us are put through a trial. And there’s a real reason some of us have been hashtagging #FuckAlzheimers on Twitter, if out of sheer frustration.
For those who have made it this far, here are the points I want you to take away.
• Immediately upon finding out your parent has dementia, get your enduring power of attorney sorted out, for both property and personal care.
• Dementia Wellington is an excellent organization so get yourself along to the carer support groups, second Monday of every month. Dementia New Zealand can’t help at this level.
• Care Coordination has been very helpful and their referral to Dementia Wellington proved more effective than phoning—however, I should note that the organization changed for the better between Dad’s original diagnosis in 2015 and how they are today.
• You do need ‘Form 5’ from your GP or someone in a position to assess your parent’s mental capacity to kick off the enduring power of attorney.
• It’s OK to cry, feel emotionally drained and ask your friends for support. It’s your parent. You expected to look after them and sometimes you need to let others do this for everyone’s good. It doesn’t mean you love your parent any less. It also doesn’t mean you are placing yourself or your partner above him. It just means you are finding the best solution all round.
Dad is still “there”, and he recognizes us, even if he doesn’t really know what day it is, can’t really cook for himself, and doesn’t fully understand consequences any more. I’m glad I spend parts of every day with him while I’m in Wellington. And while this wasn’t the 83rd birthday I foresaw at the beginning of the year, he is in a safe, caring environment. I hope the best decision is made for him and for all of us.
A letter I penned today to Prof Grant Guilford, Vice-Chancellor of Victoria University of Wellington. I support the official adoption of a Māori name (I thought it had one?) but removing Victoria is daft, for numerous reasons, not least the University’s flawed research, dealt with elsewhere.
Wellington, August 8, 2018
Prof Grant Guilford
Vice-Chancellor Victoria University of Wellington
PO Box 600
Wellington 6011
New Zealand
Dear Prof Guilford:
Re. Name change for Victoria University of Wellington
There have been many arguments against why Victoria University of Wellington should change its name. Count me in as endorsing the views of Mr Geoff McLay, whose feedback the University has already received.
To his comments, I would like to add several more.
First, since I graduated from Vic for the fourth time in 2000, branding—a subject I have an above-average knowledge of, being the co-chair of the Swedish think tank Medinge Group and with books and academic articles to my name—has become a more bottom-up affair. In lay terms, all successful brands need their community’s support to thrive. Not engaging that community properly, and putting forth unconvincing arguments for change when asked, fails ‘Branding 101’ by today’s standards. I don’t believe those of us favouring the status quo are a minority. We’re simply the ones who have engaged with the University.
As an alumnus, I have a great deal of pride in ‘Vic’, so much so that I have returned to support many of its programmes, namely Alumni as Mentors and the BA Internships. The University’s view of market-place confusion is, to my mind, a defeatist position, one which says, ‘Oh, there’s confusion, so let’s cede our position to the others who lay claim to “Victoriaâ€.’ That’s not the attitude that I have toward our fine university.
The alternative is to stand firm and build the brand on a global scale, something that is more than possible if the University were to adopt some lessons from international marketing and branding.
I have done it numerous times professionally, and for New Zealand companies with strictly limited budgets, and the University has an enviable and proud network of alumni who, I suspect, are willing to help.
Vic has told us for years it is ‘world-class’, and I expect it to stand by those claims—including confidence in its own name, not unlike the great universities in the US and UK. A lot of it is in the way the brand is positioned. Confidence goes a long way, including confidence in saying, ‘This is the real Victoria.’
Kiwis are adept at being more authentic, something which a strong branding campaign would highlight.
As alumnus, and fellow St Mark’s old boy, Callum Osborne notes, if there is to be a geographic qualifier, New Zealand has far more brand equity than Wellington, so if a change is to occur, then ‘Victoria University of New Zealand’ is an appropriate way forward.
‘University of Wellington’ says little, and there are Wellingtons elsewhere, too.
This isn’t about apeing others, but being so distinct in the way the University communicates, symbolizes and differentiates itself to all of its audiences. To be fair, I have only seen pockets of that since graduating, yet I believe it is possible, and it can be unlocked.
My late mother was a nurse. Before she was a midwife at Wellington Women’s Hospital, she was a staff nurse in wards 21 and 26 at Wellington Hospital.
From what I remember, ward 21 was first, which meant she was working there some time between 1976 and 1978. This is a letter that she received from a Sheila Mahony. When I first blogged, I assumed it was from a patient, but a quick search suggests that there was a Sheila Mahony who was a supervisor there. I don’t know the story behind this, but between the lines you can work out that the kindness expressed here is typical of nurses. The letter is dated December 23, so this was likely in response to a gesture Mum made in the spirit of Christmas.
There was an Epson bag hanging from the back of my bedroom door, hidden by larger bags. I opened it up to discover brochures from my visit to a computer fair in 1989 (imaginatively titled Computing ’89), and that the bag must have been untouched for decades.
I’ve no reason to keep its contents (if you want it, message me before Thursday, as the recycling comes the morning after), but I wanted to make some scans of the exhibitors’ catalogue for nostalgia.
Let’s start with the cover. It’s sponsored by Bits & Bytes. Kiwis over a certain age will remember this as the computer magazine in this country.
You can tell this is a product of the 1980s by the typesetting: someone couldn’t be bothered buying the condensed version of ITC Avant Garde Gothic, so they made do with electronically condensing Computers and Communications. In fact, they’re a bit light on condensed fonts, full stop, as they’ve done the same with the lines set in Futura.
While the practice is still around, the typeface choices mark this one out as a product of its time.
Inside is a fascinating article on the newfangled CD-ROM being a storage medium. Those cuts of Helvetica and Serifa are very 1980s, pre-desktop publishing. It should be noted that Dr Jerry McFaul remained with the USGS, where he had been since 1974, till his retirement. The fashions are interesting here, as is ITC Fenice letting us know that he’s speaking at the Terrace Regency Hotel, a hotel I have no recollection of whatsoever. I can only tell you that it must have been on the Terrace.
The other tech speakers have a similar look to the visiting American scientist, all donning suits—something their counterparts in 2018 probably wouldn’t today. In fact, the suit seems to be a thing of the past for a lot of events, and I often feel I’m the oldster when I wear mine.
The article itself makes a strong case for CD-ROM storage, being more space-saving and better for the environment: it’s interesting to know that the ‘depletion of the ozone layer’ was a concern then, though 30 years later we have been pretty appalling at doing anything about it.
The second article in the catalogue of any note was on PCGlobe, supplied to the magazine on 5¼-inch diskette. Bits & Bytes would have run the catalogue as part of the main magazine, and did a larger run of these inner pages, back in the day when printing was less flexible.
It’s a fascinating look back at how far we’ve come (on the tech) and how far we haven’t come (on the environment). Next year, we’ll be talking about 1989 as ‘30 years ago,’ yet we live in an age where we’re arguing over Kylie Jenner’s wealth. Progress?
I taught 180 people at tertiary level in 1999–2000.
Gutted that a second has passed away.
Most of them were kids when I taught them. Lost one to a brain bleed in 2015, just lost another to cancer.
Look after yourselves out there, and live life to the full. Tell those whom you love that you do.
I sincerely hope I’m wrong when I say that the passing of Kiwi composer, arranger and conductor Terry Gray went unnoticed in our news media.
I only found out last month that Terry died in 2011. As a kid of the 1970s and a teenager of the 1980s, Terry’s music was a big part of my life. Before we got to New Zealand, he had already composed the Chesdale cheese jingle, which Kiwis above a certain age know. He was the bandleader on Top Dance, what New Zealanders used to watch before the localized version of Strictly. Terry’s music appeared on variety shows and live events (e.g. Telequest, Miss New Zealand) through the decade. Country GP, The Fire-Raiser, Peppermint Twist, and Daphne and Chloë were also among Terry’s works. In the late 1980s, Terry released an album, Solitaire, which was one of the first LPs I bought with my own money as a teen. By the turn of the decade, Terry hosted live big band evenings at the Plaza Hotel in Wellington, sponsored by the AM Network—until the AM Network could no longer fund the fun, regular events and the radio network itself, eventually, vanished. Terry’s Mum used to attend in those days, and I must have gone to at least half a dozen. I also picked up a Top Dance cassette at one of the evenings.
I still have a nice letter from Terry somewhere, thanking me for my support, in the days when he lived in the Hutt. I learned that he eventually moved down south, to Dunedin, and died of leukemia on July 8, 2011.
On (nearly) the seventh anniversary of his passing, I want to pay tribute to Terry. Here he is in action in Top Dance, hosted by Lindsay Yeo, in 1982.
Now the PM and her partner, Clarke Gayford, have shown off their daughter to the world (video at the end of this post), it reminded me of my own experiences in the maternity ward many years ago.
I’m not a parent at the time of writing: I’m talking about the 1980s when I visited Wellington Women’s Hospital (as it then was), to wait for my Mum, a postnatal midwife, to finish work.
The 1980s don’t seem that long ago to me, and all these memories are still very clear, but when you relay the story, you realize decades have passed.
Mum shifted to WWH in 1980, when it first opened, and I still recall having a preview tour of the building before it opened. New carpets, new fixtures. Hand-held buzzers hooked up to the wall where you could call for a nurse—how modern! The 1980s had well and truly arrived, and how lucky of those patients, because this place was like a hotel. We really did think it was that flash in 1980.
And it was a nice place to visit. I finished school at St Mark’s at 2.45 p.m. and the bus would usually get to the hospital by around 3 p.m. There was a long walk to the building at the back, taking an internal route, and walking through a basement tunnel with painted stripes—it felt like a science-fiction movie. I’d get to Ward 15 and I was expected to wait in the TV room.
The TV room was next to the ‘day room’, which really meant the smoking room, where new Mums could pop in and have a fag. Every now and then, you’d get a naughty new mother who’d take an ashtray into the TV room, where I’d be waiting, but we are talking the early 1980s, and the term secondhand smoke had not entered the vernacular.
Of course, we youngsters weren’t allowed to change the channel if adults were watching. Unfortunately, in the days of two state-run channels, most new mothers would watch Prisoner, and I don’t mean The Prisoner, with Patrick McGoohan. I meant the Australian soap opera Prisoner, set in a women’s prison, and known to British readers as Prisoner: Cell Block H. I could never comprehend why anyone would watch the sheer misery of the storylines about a women’s prison, but I suppose in the early 1980s, these ladies were thinking: ‘No matter how tough things are for me, at least I’m not in Wentworth.’ I would wait patiently for 3.30 p.m. to tick by, and Lynne Hamilton singing ‘On the Inside’ (itself a depressing, haunting theme tune) and the Grundy logo were signs that relief was coming. However, to this day, I still know this blasted song, and can play it by ear on a piano. Without checking online:
On the inside the roses grow,
They don’t mind the stony ground.
But the roses there are prisoners, too,
When morning comes around.
Only once do I remember a Mum offering me control of the TV during the Prisoner hour to watch whatever channel I wanted, and of course, that meant the children’s programming, eventually an after-school show imaginatively titled After School, hosted by a cheerful Te Reo-speaking man called Olly Ohlson.
Mum would be another 15 to 30 minutes, so my time in front of the telly was fairly limited. We’d walk home to Newtown in those days, and my memory of that journey home was that it was often sunny. Of course, that couldn’t have been the case, as I have equally strong memories of below-zero temperatures on the radio in the morning in 1981, and very grey weather watching Springbok tour marches (including fights between protesters and police officers) outside my window growing up. Those may or may not be the subject of another blog entry, as I’m not traditionally one to post childhood reminiscences on this blog.
I see there’s an opinion piece in Stuff from the Chamber of Commerce saying the Wellington City Council should sell its stake in Wellington Airport, because it doesn’t bring in that much (NZ$12 million per annum), and because Auckland’s selling theirs.
It’s not too dissimilar to calls for the Council to sell the Municipal Electricity Department a few decades ago, or any other post-Muldoon call about privatization.
Without making too much of a judgement, since I haven’t inquired deeply into the figures, it’s interesting that the line often peddled by certain business groups, when they want governments to sell assets, is: ‘They should run things like households, and have little debt.’
This never applies to themselves. When it comes to their own expansion, they say, ‘We don’t need to run things like households, we can finance this through debt.’
The same groups say that governments should be run more like businesses.
However, their advice is always for governments to be run like households.
Has it escaped them that they are different beasts?
I wouldn’t mind seeing government entities run like businesses, making money for their stakeholders, and said so when I campaigned for mayor.
Doing this needs abandoning a culture of mediocrity at some of those entities. Some believe this is impossible within government, and there are credible examples, usually under former command economies. But then there are also decent examples of state-owned enterprises doing rather well, like Absolut, before they were sold off by the Swedish government. If you want something current, the Shanghai Automotive Industry Corp. is one of the most profitable car makers on the planet.
The difference lies in the approach toward the asset.
But what do I know? I come from Hong Kong where the civil service inherited from the British is enviably efficient, something many occidentals seem to believe is impossible—yet I live in a country where I can apply for, and get, a new passport in four hours. Nevertheless, that belief in inefficiency holds.
Change your mindset: things are possible with the right people. Don’t be a Luddite.
And therein lies why Stuff and I are on different planets.
As you saw in the previous post’s postscripts, it is possible to upload videos of longer than one minute to Instagram, but Instagram may or may not let the public see them. If you want people to see your videos for sure, then keep them to the standard minute. But if you want to chance it, so far my experience is 50–50, and there’s no correlation with length. Like all things Facebook, there is no consistency, and you are at the whim of the technology and its questionable database integrity. Here are the ones that have worked, the first at 2′50″, the second at 4′, the third at 3′51″, and the fourth at 7′03″ (this had to be uploaded twice as Facebook hid the first attempt).
PS., April 28, 12.37 a.m.: A few more tries and the odds of a video lasting longer than one minute being visible to other Instagram users are definitely 1:2. The latest is this, at 7′53″.
Don’t be surprised if these record zero views on Instagram. I believe their stats only count full views, and no one’s going to sit watching a video there for that long unless it’s particularly compelling.
P.PS., May 4: I attempted a 9′03″ video. No joy. Instagram will allow the upload but the actual process takes an incredibly long time. The progress bar goes back a few times. Eventually it says there is an error. In theory, I think it’s possible, but right now I haven’t managed to exceed 7′53″.
